Soon after, I made my way across Manhattan to Lenox Hill Hospital, where I was welcomed as a special guest by the Neurology Department under the direction of Dr Salman Azhar.
Standing before some of the brightest minds in medicine, I had the honour of presenting my story and role as a Consumer Consultant. Their response was incredibly warm and encouraging—they shared their admiration for the groundbreaking work being done in Australia and voiced how much they valued the model of collaborative research with consumers.
To be told that I had “something truly special to give” filled me with pride and reinforced the importance of championing this work.
Comfort & Calm in White Plains: My Stay at Sonesta Hotels & a Tribute to a Remarkable Leader
After an inspiring and intense week at the United Nations for COSP18, I arrived in White Plains ready to shift gears and focus on the next exciting chapter—my upcoming visit to the Burke Neurological Institute. To prepare, I checked into the Sonesta Hotels & Resorts – White Plains Downtown, where I was met with calm, comfort, and every seamless convenience a traveller could hope for.
From the smooth check-in to the beautifully appointed room, everything about my stay has been effortless and restorative. The hotel offers a quiet sophistication that allows guests like me—here on meaningful work—to feel both grounded and cared for. It’s the kind of place where you can breathe deeply, reflect, and refocus.
Tonight, I had the privilege of dining at Sam’s of Gedney Way, a beloved local spot in White Plains, to honour Kathleen Friel, who is soon retiring from her role at Burke Neurological Institute. Kathleen has been a pillar of compassion, excellence, and visionary leadership at Burke for decades. Her dedication to advancing neurological rehabilitation—and doing so with integrity and heart—has left an indelible mark on the institute, her colleagues, and so many individuals and families impacted by neurological conditions.
Being there tonight, surrounded by warmth and legacy, I couldn’t help but feel grateful for this opportunity—not only to visit Burke tomorrow and learn from their brilliant team, but to acknowledge and celebrate those like Kathleen, who have paved the way for a more inclusive and hopeful future in neurological care.
As I return to my room to prepare for tomorrow’s visit, I carry with me the calm of Sonesta, the inspiration from Kathleen’s career, and a deep sense of purpose for the road ahead.
From the smooth check-in to the beautifully appointed room, everything about my stay has been effortless and restorative. The hotel offers a quiet sophistication that allows guests like me—here on meaningful work—to feel both grounded and cared for. It’s the kind of place where you can breathe deeply, reflect, and refocus.
Tonight, I had the privilege of dining at Sam’s of Gedney Way, a beloved local spot in White Plains, to honour Kathleen Friel, who is soon retiring from her role at Burke Neurological Institute. Kathleen has been a pillar of compassion, excellence, and visionary leadership at Burke for decades. Her dedication to advancing neurological rehabilitation—and doing so with integrity and heart—has left an indelible mark on the institute, her colleagues, and so many individuals and families impacted by neurological conditions.
Being there tonight, surrounded by warmth and legacy, I couldn’t help but feel grateful for this opportunity—not only to visit Burke tomorrow and learn from their brilliant team, but to acknowledge and celebrate those like Kathleen, who have paved the way for a more inclusive and hopeful future in neurological care.
As I return to my room to prepare for tomorrow’s visit, I carry with me the calm of Sonesta, the inspiration from Kathleen’s career, and a deep sense of purpose for the road ahead.
A Day of Purpose, People, and a Little Passport Magic
Today was one of those days that reminds me why I do what I do—and just how extraordinary life can be when you lean into it with heart, hope, and a bit of courage.
The day began at the United Nations. I proudly received my official pass and entered the UN building, feeling the weight of the moment settle in. It was a surreal and humbling experience—walking through those doors, knowing I was there not just as a visitor, but as someone representing lived experience, advocacy, and the consumer voice on a global stage. The energy was electric, and I could feel the significance of every conversation taking place in those halls.
The day began at the United Nations. I proudly received my official pass and entered the UN building, feeling the weight of the moment settle in. It was a surreal and humbling experience—walking through those doors, knowing I was there not just as a visitor, but as someone representing lived experience, advocacy, and the consumer voice on a global stage. The energy was electric, and I could feel the significance of every conversation taking place in those halls.
Then came an unexpected twist—I thought I had misplaced my passport. With my heart racing, I headed to the Australian Embassy for help. The staff were kind, calm, and wonderfully reassuring. And then, like a scene from a movie, a lovely woman walked into the Embassy and handed in my passport. Just like that, it was back in my hands. Relief doesn’t even begin to cover it—I was speechless, grateful, and honestly a bit emotional. Moments like that remind you just how good people can be.
After a quick return to my hotel to regroup (and breathe), I got ready for the evening’s Australian Reception for the COSP delegates. The atmosphere was vibrant and welcoming, full of connection, conversation, and a shared commitment to advocacy, equity, and inclusion. To be surrounded by others who are passionate about making real change was both energising and grounding.
As I reflect on today—from the UN to Lenox Hill, to the Embassy and beyond—I feel deeply grateful. It was a day of professional purpose, personal growth, a few nerves, and a lot of heart. It reminded me that the path I’ve chosen, though sometimes unpredictable, is exactly where I’m meant to be.
After a quick return to my hotel to regroup (and breathe), I got ready for the evening’s Australian Reception for the COSP delegates. The atmosphere was vibrant and welcoming, full of connection, conversation, and a shared commitment to advocacy, equity, and inclusion. To be surrounded by others who are passionate about making real change was both energising and grounding.
As I reflect on today—from the UN to Lenox Hill, to the Embassy and beyond—I feel deeply grateful. It was a day of professional purpose, personal growth, a few nerves, and a lot of heart. It reminded me that the path I’ve chosen, though sometimes unpredictable, is exactly where I’m meant to be.
A Seat in the General Assembly Hall – My Time at the United Nations
Walking into the United Nations Headquarters was nothing short of surreal. There’s an energy that pulses through the halls – a weight, a promise, a history. And then, stepping into the General Assembly Hall itself, I felt it: that unmistakable moment where your breath catches and your heart knows it’s witnessing something bigger than itself.
The sheer grandeur of the Hall is overwhelming. With its iconic green and gold color palette, the room is as symbolic as it is functional. Every detail – from the emblem of the UN behind the podium, to the rows upon rows of country nameplates – whispers of diplomacy, of global decisions made, and of voices that have shaped history. Sitting among other delegates and representatives from around the world, I felt honoured, proud, and deeply moved to be part of a global conversation – especially as someone with lived experience representing disability rights and the stroke community.
The sheer grandeur of the Hall is overwhelming. With its iconic green and gold color palette, the room is as symbolic as it is functional. Every detail – from the emblem of the UN behind the podium, to the rows upon rows of country nameplates – whispers of diplomacy, of global decisions made, and of voices that have shaped history. Sitting among other delegates and representatives from around the world, I felt honoured, proud, and deeply moved to be part of a global conversation – especially as someone with lived experience representing disability rights and the stroke community.
What made the experience so special?
The inclusivity, for starters. To see people of all backgrounds, cultures, abilities, and sectors sitting side-by-side, striving for progress, was inspiring. The agenda was vast, covering everything from global peace to inclusive development, and yet every speaker, every comment, seemed to thread back to a shared human experience. Being present as a lived experience advocate, it reinforced why voices like mine – and those of many others – matter in rooms like this.
There was also a wonderful sense of formality and tradition. Hearing speeches delivered in multiple languages, watching delegates nod in respect, and even observing the quiet choreography of diplomats moving in and out was like watching a living, breathing dance of diplomacy.
But like all powerful spaces, there were some challenges too.
The accessibility of the space, while better than many, could still use improvement. While ramps and lifts are present, navigating them without assistance can be daunting, especially during high-traffic moments. The formality of the Hall can also feel intimidating – particularly for someone attending as a consumer representative or first-time delegate. It’s easy to feel like a small fish in a very, very big pond.
Then there’s the pace – or rather, the patience it demands. Hours can pass before your topic is discussed. Important issues are sometimes glossed over or stalled by procedural formality. It’s a place where real change is possible, but it rarely happens quickly.
Still, I wouldn’t trade the experience for anything.
Sitting in the General Assembly Hall reminded me of why we fight for a seat at the table. Why we push for inclusion. Why we keep showing up, even when systems feel slow or overwhelming. Because every voice added to the Hall – every story, every perspective – strengthens the global narrative.
And on that day, I was proud to be part of it.
Then there’s the pace – or rather, the patience it demands. Hours can pass before your topic is discussed. Important issues are sometimes glossed over or stalled by procedural formality. It’s a place where real change is possible, but it rarely happens quickly.
Still, I wouldn’t trade the experience for anything.
Sitting in the General Assembly Hall reminded me of why we fight for a seat at the table. Why we push for inclusion. Why we keep showing up, even when systems feel slow or overwhelming. Because every voice added to the Hall – every story, every perspective – strengthens the global narrative.
And on that day, I was proud to be part of it.
Moments in Motion: A Powerful Day in New York City
June 8, 2025
By Brooke Parsons
By Brooke Parsons
🇦🇺 Meeting with AFDO Delegates
Today was one of those rare and unforgettable days—the kind that fills your heart with pride and reminds you exactly why you do what you do.
It began with a truly special moment: meeting with the incredible Australian delegates from the Australian Federation of Disability Organisations (AFDO).
To stand beside such passionate, committed changemakers—each representing our diverse community with courage, clarity, and compassion—was a powerful reminder of the strength we carry when we come together.
We shared stories, laughs, aspirations, and the unspoken understanding that we’re all here, not just for ourselves, but for every Australian living with disability whose voice deserves to be heard on a global stage.
To be part of this moment, here in New York City, was nothing short of extraordinary.
A Photoshoot to Remember
With that spirit of unity and purpose energising me, I embarked on a photoshoot that felt more like a celebration of identity, strength, and possibility.
Grand Central Terminal
Beneath its celestial ceiling, amidst the rush of commuters and golden arches, I stood still—claiming space in one of the world’s busiest places. It was empowering, beautiful, and grounding.
Bryant Park
We then rolled through the lush calm of Bryant Park, where every click of the camera captured not just a picture, but a feeling. The breeze, the light, the joy of the moment—it all came together effortlessly.
New York Public Library
Finally, we arrived at the steps of the iconic New York Public Library, steeped in stories, resilience, and wisdom. There was something poetic about standing on those stairs—my own story unfolding in front of a place that holds millions. It felt symbolic, intentional, and so right.
This entire shoot was brought to life by an extraordinary photographer from Travelshoot, whose eye for both light and emotion transformed the experience into something magical. They didn’t just take pictures—they captured me. My spirit. My stillness. My strength.
This entire shoot was brought to life by an extraordinary photographer from Travelshoot, whose eye for both light and emotion transformed the experience into something magical. They didn’t just take pictures—they captured me. My spirit. My stillness. My strength.
Final Reflections
Today was more than just photographs and meetings. It was about presence. Purpose. Pride.
It was about being seen—and knowing that I belong here.
To walk the streets of New York, to connect with our Australian disability leaders, and to stand strong in front of the camera is something I will never take for granted.
Because every step says:
“I am here. I matter. My story is powerful.”
And so is yours.
It was about being seen—and knowing that I belong here.
To walk the streets of New York, to connect with our Australian disability leaders, and to stand strong in front of the camera is something I will never take for granted.
Because every step says:
“I am here. I matter. My story is powerful.”
And so is yours.
Until next time...
Keep rising. Keep rolling. And keep showing the world the unstoppable force that lives in you.
Journey through Hong Kong International Airport: From Check in to Boarding Your flight to JFK
Whether you’re heading to New York City for business, study, or an adventure of a lifetime, flying from Hong Kong International Airport (HKIA) to JFK is an experience that seamlessly blends efficiency with worldclass service.
HKIA, one of the busiest and well regarded airports in the world, offers an impressively smooth process from the moment you enter the terminal to the moment your plane takes off for the Big Apple.
Here's a step by step guide on what to expect when flying from HKIA to JFK.
1. Arriving at the Airport
Most international travelers arrive at HKIA via the Airport express train, taxis, or private car. The airport express is especially convenient, connecting Hong Kong station to the airport in just 24 minutes. If you’re checking in downtown (available for some airlines), your bags will already be on their way by the time you reach the terminal.
HKIA’sb departure halls are found in Terminal 1, which handles most international flights, including those to the US.
HKIA’sb departure halls are found in Terminal 1, which handles most international flights, including those to the US.
2. Check In and baggage drop off
Once inside Terminal 1, you’ll find the airline check in counters clearly marked by alphabetical zones. If you’re flying with Cathay Pacific, American airlines, or other major carriers serving JFK, your check in will usually begin 3 hours before departure.
• Documents needed: Valid Passport, valid US visa or ESTA, and your flight ticket or e confirmation.
• Security Check In: Be prepared for questions related to your travel purpose and checked items, especially given US security regulations.
Self service kiosks are available for savvy travelers, but full service counters are also plentiful for those needing assistance or checking baggage (definitately not me!)
• Documents needed: Valid Passport, valid US visa or ESTA, and your flight ticket or e confirmation.
• Security Check In: Be prepared for questions related to your travel purpose and checked items, especially given US security regulations.
Self service kiosks are available for savvy travelers, but full service counters are also plentiful for those needing assistance or checking baggage (definitately not me!)
3. Immigration and Security Screening
Once checked in, proceed to departures level. There you’ll go through Hong Kong Immigration, where officers will check your passport and departure documentation. Hong Kong residents may use e channels for faster clearance.
Following immigration is security screening. Laptops, liquids, and tablets must be removed from your bags. As the flight is bound for the US, expect more thorough screening. Occasionally, secondary security checks near the gate are also conducted.
Following immigration is security screening. Laptops, liquids, and tablets must be removed from your bags. As the flight is bound for the US, expect more thorough screening. Occasionally, secondary security checks near the gate are also conducted.
4. Time to explore
You’re now airside – and in one of the worlds best airports.
• Shopping and Dining: HKIA is a haven for luxury shopping, local souvenirs, and gourmet dining. From Tim Ho Wan (Michelin starred dim sum) to Western coffee chains and international cuisine, there’s something from everyone.
• Lounges: If you’re flying business class or hold elite frequent flyer status, lounges like The Pier or The Wing (Cathay Pacific) offer a serene environment with showers, buffets, and even noodle bars.
• Shopping and Dining: HKIA is a haven for luxury shopping, local souvenirs, and gourmet dining. From Tim Ho Wan (Michelin starred dim sum) to Western coffee chains and international cuisine, there’s something from everyone.
• Lounges: If you’re flying business class or hold elite frequent flyer status, lounges like The Pier or The Wing (Cathay Pacific) offer a serene environment with showers, buffets, and even noodle bars.
5. Gate Arrival and US Pre Boarding Checks
At around 60 minutes before departure, make your way to your assigned gate. Depending on the airline, gates for US bound flights are often located in the Midfield Concourse or North Satellite Concourse, which might require a quick ride on the airports Automated People Mover.
Before boarding, expect additional checks by airline staff or security personnel. These often include:
• Verifying passports and visas/ ESTA
• Random Bag searches
• Security questioning, especially if traveling solo or with unusual routing
This is standard protocol for US bound flights globally and helps maintain onboard security.
Before boarding, expect additional checks by airline staff or security personnel. These often include:
• Verifying passports and visas/ ESTA
• Random Bag searches
• Security questioning, especially if traveling solo or with unusual routing
This is standard protocol for US bound flights globally and helps maintain onboard security.
6. Boarding your flight
Boarding typically begins 45-60 minutes before departure, starting with premium passengers and then groups according to seat zones.
Make sure to have your boarding pass and passport in hand. Once scanned, you’ll walk down the jet bridge into the aircraft – often a Boeing 777 or Airbus A350 for long haul flights.
Find your seat, stow your carry ons, and get settled for the 16+ hour flight to JFK. The journey is long, but onboard services usually include in flight entertainment, multiple meals and Wifi (depending on the carrier).
Make sure to have your boarding pass and passport in hand. Once scanned, you’ll walk down the jet bridge into the aircraft – often a Boeing 777 or Airbus A350 for long haul flights.
Find your seat, stow your carry ons, and get settled for the 16+ hour flight to JFK. The journey is long, but onboard services usually include in flight entertainment, multiple meals and Wifi (depending on the carrier).
My final thoughts: From efficient check in to world class amenities, Hong Kong International Airport makes flying to JFK a streamlined and often enjoyable experience. Despite the added security for US bound flights, the process is logical, clearly signposted, and handled with the professionalism that has earned HKIA numerous global awards.
So next time you’re at HKIA preparing for that long haul journey to New York, take a moment to appreciate the seamless choreograph that makes this journey
Journal Entry: Polishing Confidence: My Pre-NY Beauty Rituals
There’s something powerful about preparing for a trip—especially one as vibrant and daring as New York City. Whether you’re heading there for work, advocacy, adventure, or all of the above, the lead-up is just as much about mental readiness as it is about physical preparation. For me, that preparation took the form of a few cherished beauty rituals—little acts of self-care that left me feeling refreshed, polished, and ready to take on the Big Apple with confidence.
Nailed it – literally.
First on the checklist: nails. There’s something about a fresh set of nails that makes me feel like I have my life together – even when I absolutely don’t. I went for the theme New York. They are a piece of art with a glossy finish – these nails aren’t just an accessory; they are a reminder of how far I’ve come and how proud I am to be heading to New York, representing lived experience with purpose and power.
Waxed on, Worry off.
Next: waxing. Let’s be real – waxing isn’t the most glamorous part of a beauty routine, but it’s a game changer when it comes to feeling fresh and comfortable. It’s not just about aesthetics; it’s about lightness, freedom, and the confidence to wear whatever I fancy, whether it’s a sleeveless top or a bold dress. There’s something empowering about walking out of that appointment with smoother skin and fewer things to fuss over. Minimal effort, maximum results.
The Royal Treatment - Literally.
The highlight of this beauty prep was, however, my Royal Deluxe Pedicure – a truly indulgent experience and well-earned treat for my feet, which have been through more than most. After everything they’ve carried me through (106 surgeries included), they deserved more than a basic soak and polish. This was the next level: exfoliation, massage, booties, a hydration mask for my feet, and the perfect polish. It was therapeutic – both physically and emotionally. I emerged from the salon not just with softer skin and gleaming toenails but also with a stronger sense of grounding. It’s amazing what a little pampering can do for the soul.
These beauty rituals weren’t just about appearances – they were rituals of restoration. They provided a way to care for my body, reflect on the journey, and step into the next chapter with clarity and confidence. As I packed for New York, supported by the incredible work of organisations like the Stroke Foundation, I felt renewed and ready. When you feel good in your skin, you sit or stand a little taller – and in a city like NYC, that makes all the difference.
These beauty rituals weren’t just about appearances – they were rituals of restoration. They provided a way to care for my body, reflect on the journey, and step into the next chapter with clarity and confidence. As I packed for New York, supported by the incredible work of organisations like the Stroke Foundation, I felt renewed and ready. When you feel good in your skin, you sit or stand a little taller – and in a city like NYC, that makes all the difference.
Journal Entry: Heys Smart Luggage — The Future of Travel is Here
In today’s fast-paced, connected world, smart solutions are transforming the way we travel—and Heys Smart Luggage is leading the charge. Designed for the modern, tech-savvy traveller, Heys Smart Luggage delivers a seamless and complete travel experience powered by cutting-edge innovation.
At the heart of this high-end luggage is the Heys Smart Luggage app, available for both Apple and Android devices. This intuitive app gives users total control right from their smartphones—making travel smarter, easier, and more secure.
Packed with intelligent features, Heys Smart Luggage includes a Smart Handle with integrated scales to weigh your bag instantly, a Bluetooth Smart TSA Lock for secure, app-controlled access, and a Proximity Alarm to alert you if your bag moves out of range. These advanced features combine convenience, security, and peace of mind like never before.
Crafted from 100% polycarbonate, the luggage is not just smart—it’s strong. Lightweight yet incredibly durable, it offers top-tier impact resistance to withstand the demands of any journey.
Heys Smart Luggage is more than just a suitcase. It’s your trusted travel companion—sleek, secure, and fully connected. Welcome to the future of travel.
A Step Toward Smooth Travel
Today, I took a significant step toward making my future work travel more manageable: I applied for the Qantas Carer Concession Card. This card is intended to provide discounted airfares for individuals with disabilities who require a carer to travel with them. It enables the companion to fly at a reduced fare, enhancing the accessibility and affordability of travel.
Why I Had to Apply
With multiple work commitments on the horizon—including my upcoming trip to New York—I needed to find a way to ensure smooth travel arrangements. Given my medical history and the support I sometimes require, having a designated carer while travelling is essential. The Qantas Carer Concession Card ensures I won't have to navigate everything on my own, providing the assistance I need while keeping costs manageable.
The Application Process
Applying for the card involved several steps:
1. Completing the Application Form – The form required personal details, medical information, and a declaration confirming my eligibility.
2. Medical Certification – A healthcare professional had to verify that I meet the criteria for requiring a carer while traveling.
3. Submitting Documents – To finalize the application, I had to provide supporting documents, including medical records and identification.
4. Processing & Approval – Once the form is submitted, I had to wait for approval before I could start booking flights with the concession applied.
2. Medical Certification – A healthcare professional had to verify that I meet the criteria for requiring a carer while traveling.
3. Submitting Documents – To finalize the application, I had to provide supporting documents, including medical records and identification.
4. Processing & Approval – Once the form is submitted, I had to wait for approval before I could start booking flights with the concession applied.
What This Means for My Travel
This card will be a game-changer for my work-related travel in 2025, particularly as I prepare for my trip to New York. It provides peace of mind, knowing I can have a carer accompany me when needed, ensuring a smoother journey, especially with long-haul flights and airport transitions.
As I continue planning my international commitments, this approval will remove a significant barrier. It will allow me to focus on my work while having the necessary support. Now, I just need to finalize my travel details and gear up for an exciting year ahead!
As I continue planning my international commitments, this approval will remove a significant barrier. It will allow me to focus on my work while having the necessary support. Now, I just need to finalize my travel details and gear up for an exciting year ahead!
Journal Entry: The Sunflower Program – A Step Toward Better Accessibility
Today, I've been thinking about the Sunflower Program and what it means for me as a disabled passenger, both nationally and internationally. The program uses a discreet Sunflower lanyard or symbol to indicate that the wearer has a hidden disability and may need extra support, patience, or understanding when traveling.
For me, this represents a significant shift in accessibility and awareness. Travelling, whether by plane, train, or bus, has always been a challenge due to my complex medical needs. There have been countless moments when I've struggled—navigating busy airports, explaining my conditions repeatedly, or dealing with the physical exhaustion that travel brings. The Sunflower Program could help bridge that gap by silently communicating my needs without requiring me to explain myself constantly.
Nationally, this means that when I navigate through airports, train stations, and public transport systems in Australia, there's a higher likelihood that staff and fellow travellers will understand that I may need extra time or assistance. It alleviates the pressure of having to explain why I might need priority seating, additional time through security, or arrangements to manage my conditions.
Internationally, the program holds even greater value. Different countries have varying levels of disability awareness, and explaining my situation—especially in another language—can be exhausting and frustrating. With the Sunflower symbol recognised in airports, transport hubs, and even some businesses globally, it creates a universal sign of understanding. This means I may receive quicker assistance, access to priority lanes, or simply more kindness and patience from staff who recognise what the symbol represents.
But beyond the practical benefits, the Sunflower Program represents something deeper: recognition, inclusion, and dignity.
It acknowledges that disabilities aren't always visible and that people like me shouldn't have to fight for understanding at every step of our journey. It's a small yet powerful tool that gives me confidence to travel more freely, knowing that support is available if I need it.
I hope to see this initiative expand even further, encouraging more businesses, public transport services, and international organisations to adopt it. At the end of the day, accessibility is not just about physical adjustments—it's about fostering an environment of awareness, compassion, and inclusivity.
But beyond the practical benefits, the Sunflower Program represents something deeper: recognition, inclusion, and dignity.
It acknowledges that disabilities aren't always visible and that people like me shouldn't have to fight for understanding at every step of our journey. It's a small yet powerful tool that gives me confidence to travel more freely, knowing that support is available if I need it.
I hope to see this initiative expand even further, encouraging more businesses, public transport services, and international organisations to adopt it. At the end of the day, accessibility is not just about physical adjustments—it's about fostering an environment of awareness, compassion, and inclusivity.
Journal Entry: Obtaining the Multi Purpose Taxi Program Card
Today, I finally took the step to apply for the Multi Purpose Taxi Program (MPTP) Card, a service designed to assist people with disabilities or medical conditions in accessing affordable transport. This card provides a subsidy on taxi fares, covering 50% (or in some cases, 100%) of the cost, making travel more accessible for those who face mobility challenges.
Who Can Apply?
The program is available to individuals who have a permanent and severe disability or medical condition that significantly impacts their ability to use public transport.
This includes people with physical disabilities, neurological conditions, vision impairments, or those who rely on mobility aids. An application usually requires medical certification from a healthcare professional to confirm eligibility.
What It Means for People Who Have One
For those who qualify, the MPTP Card is more than just a discount; it’s a gateway to independence. It allows individuals to attend medical appointments, go shopping, visit family and friends, or even just enjoy a social outing—things that many take for granted. Without this support, transport costs could be a significant barrier, limiting a person’s ability to participate fully in life.
What This Card Means to Me
For me, having the MPTP Card represents freedom and security. With my medical conditions and physical limitations, using public transport is not always practical—or even possible—especially on days when I’m feeling unwell or fatigued. This card will allow me to travel more safely, comfortably, and affordably, without the constant stress of how I’ll get from point A to point B.
This means I can attend my many specialist appointments without worrying about excessive costs. It also means I can travel more spontaneously, rather than meticulously planning every trip around accessibility and cost. Ultimately, it gives me greater control over my mobility and allows me to focus on my health and well-being rather than being restricted by transportation barriers.
This means I can attend my many specialist appointments without worrying about excessive costs. It also means I can travel more spontaneously, rather than meticulously planning every trip around accessibility and cost. Ultimately, it gives me greater control over my mobility and allows me to focus on my health and well-being rather than being restricted by transportation barriers.
Limitations: Only Available in Victoria
One downside is that the MPTP is only available within Victoria, Australia. It does not extend interstate or overseas. This means that when I travel outside Victoria, I won’t have the same level of transport assistance. I’ll need to plan ahead, look into alternative transport options, and check if any similar programs exist in other locations.
While this limitation is frustrating, I’m still grateful for the independence the MPTP will give me within Victoria. I’m hopeful that the application process will go smoothly, and I’m looking forward to the newfound freedom and peace of mind this card will provide.
While this limitation is frustrating, I’m still grateful for the independence the MPTP will give me within Victoria. I’m hopeful that the application process will go smoothly, and I’m looking forward to the newfound freedom and peace of mind this card will provide.
Journal Entry: Renewing My Australian Passport
Date: November 2024
Today marked a significant milestone as I embarked on the journey to renew my Australian passport.
This document facilitates travel and symbolises my identity and the freedom to explore the world. As I now know I am off to New York, it was time to get my Passport renewed.
Steps in the Passport Renewal Process:
1. Checking Eligibility: I confirmed that I was eligible for the renewal process, ensuring my current passport was issued on or after 1 July 2000 and had been valid for at least two years when issued.
2. Completing the Application: I filled out the passport renewal application form online, providing necessary personal details and ensuring accuracy to avoid any delays.
3. Gathering Supporting Documents: Along with the completed form, I gathered my current passport and two recent identical passport-sized photographs that met the specified requirements.
4. Submission: I submitted my application in person at an Australia Post outlet, which acts as an agent for the Australian Passport Office.
5. Payment: The standard 10-year passport fee had increased to $412 as of January 1, 2025.
6. Processing Time: I was informed that the standard processing time is approximately six weeks, though this can vary.
7. Collection: Upon receiving notification that my passport was ready, I visited the Passport Office to collect it, presenting my identification and the collection notice.
2. Completing the Application: I filled out the passport renewal application form online, providing necessary personal details and ensuring accuracy to avoid any delays.
3. Gathering Supporting Documents: Along with the completed form, I gathered my current passport and two recent identical passport-sized photographs that met the specified requirements.
4. Submission: I submitted my application in person at an Australia Post outlet, which acts as an agent for the Australian Passport Office.
5. Payment: The standard 10-year passport fee had increased to $412 as of January 1, 2025.
6. Processing Time: I was informed that the standard processing time is approximately six weeks, though this can vary.
7. Collection: Upon receiving notification that my passport was ready, I visited the Passport Office to collect it, presenting my identification and the collection notice.
The Significance of Holding a Passport:
Possessing a passport is more than just having a travel document; it serves as a gateway to the world. It affirms my identity and citizenship, enabling me to cross borders, experience diverse cultures, and connect with people globally. An Australian passport offers visa-free or visa-on-arrival access to numerous countries, reflecting the nation’s strong international standing.
Renewing my passport reaffirms my commitment to exploration and personal growth. It reminds me of the vast opportunities that exist beyond my country’s borders and the adventures waiting to be discovered.
As I hold this new passport, I feel a renewed sense of excitement and responsibility. It’s not merely a booklet with my photo and details; it’s a testament to my preparedness to embrace the world, learn from its myriad experiences, and contribute positively wherever I go.
Here’s to new journeys and the stories yet to be written.
Renewing my passport reaffirms my commitment to exploration and personal growth. It reminds me of the vast opportunities that exist beyond my country’s borders and the adventures waiting to be discovered.
As I hold this new passport, I feel a renewed sense of excitement and responsibility. It’s not merely a booklet with my photo and details; it’s a testament to my preparedness to embrace the world, learn from its myriad experiences, and contribute positively wherever I go.
Here’s to new journeys and the stories yet to be written.
Journal Entry: The Village of Supporters
As I reflect on this incredible journey, I am currently organising a trip to the United Nations and beyond; I am reminded that no journey of this magnitude is ever undertaken alone.
From the moment I decided to apply for the Future Leaders Grant to where I stand now, it has taken a village—my village—to get me here. The process has been a testament to the power of community, resilience, and unwavering support.
It all began with a bold step: submitting my application for the Future Leaders Grant. That moment was more than just paperwork; it was the start of something bigger than me. The application required introspection, a clear vision, and the courage to dream. When I received the news that I had been awarded the grant, it was an emotional milestone—not just for me but for everyone who had encouraged me, believed in me, and walked this path alongside me. The lead-up to the grant has been filled with preparation, determination, and an overwhelming sense of gratitude. Navigating this journey has taken many hands and hearts, and the unwavering support I have received has been humbling. Whether it's logistical planning, emotional encouragement, or simply knowing that I have people who believe in me, every bit of support has played a vital role in ensuring I am ready for this incredible opportunity.
As I embark on this journey to New York, my village continues to stand by my side. The support I will receive while there—from those physically present to those cheering me on from afar—will be invaluable. The collective strength of my village will power every step I take at the UN, every conversation, every presentation, and every moment of advocacy.
But this journey doesn't end in New York. It continues well beyond as I return to share my experiences, present my learnings, and advocate for the changes I am passionate about. The post-trip presentations and discussions will be an opportunity to bring my insights back to the community, those who have supported me, and those who will continue to walk this path with me.
But this journey doesn't end in New York. It continues well beyond as I return to share my experiences, present my learnings, and advocate for the changes I am passionate about. The post-trip presentations and discussions will be an opportunity to bring my insights back to the community, those who have supported me, and those who will continue to walk this path with me.
Journal Entry: The Young Stroke Service – Bridging the Gap for Young Survivors
The Young Stroke Service (YSS) is a pilot health service that helps young stroke survivors aged 18 to 55 years old in Victoria and South Australia. The YSS provides tailored support to help meet the unique needs of young stroke survivors in recovery and aims to fill the critical gaps in stroke care for young people.
By focusing specifically on the challenges faced by younger individuals—such as returning to work, navigating relationships, and managing long-term health—the YSS is helping to reshape what post-stroke recovery looks like for a younger generation. This initiative represents a vital step forward in ensuring stroke support is not one-size-fits-all, but responsive, inclusive, and age-appropriate.
Journal Entry: The George Institute for Global Health: Pioneering Equity in Global Health
Founded in 1999 in Sydney by Professors Robyn Norton and Stephen MacMahon, The George Institute for Global Health is a leading independent medical research organisation dedicated to improving the health of millions worldwide, particularly those in underserved communities. With major centres in Australia, India, and the UK, and projects spanning over 60 countries, the Institute is at the forefront of tackling non-communicable diseases (NCDs) and injuries through innovative research and policy advocacy.
A Mission-Driven Approach
The Institute’s mission is to improve the health of millions of people worldwide by:
• Better Treatments: Developing effective and affordable treatments for the world’s leading health problems.
• Better Care: Transforming primary healthcare to deliver better health outcomes for more people.
• Healthier Societies: Harnessing the power of governments, markets, and communities to improve population health.
These pillars guide the Institute’s comprehensive strategy, focusing on equity, resilience, and impact.
• Better Treatments: Developing effective and affordable treatments for the world’s leading health problems.
• Better Care: Transforming primary healthcare to deliver better health outcomes for more people.
• Healthier Societies: Harnessing the power of governments, markets, and communities to improve population health.
These pillars guide the Institute’s comprehensive strategy, focusing on equity, resilience, and impact.
Research That Transforms Lives
The George Institute conducts high-quality, evidence-based research across various health areas, including:
• Cardiovascular and Renal Health: Addressing heart and kidney diseases through large-scale clinical trials.
• Brain Health: Advancing research to prevent, detect, and manage brain-related diseases.
• Women’s Health: Focusing on health issues affecting women and girls globally.
• Food Policy and Planetary Health: Investigating the impact of diet and environmental factors on health.
Through its Centre for Operational and Research Excellence (CORE), the Institute ensures the highest standards in data management, quality assurance, and research efficiency.
• Cardiovascular and Renal Health: Addressing heart and kidney diseases through large-scale clinical trials.
• Brain Health: Advancing research to prevent, detect, and manage brain-related diseases.
• Women’s Health: Focusing on health issues affecting women and girls globally.
• Food Policy and Planetary Health: Investigating the impact of diet and environmental factors on health.
Through its Centre for Operational and Research Excellence (CORE), the Institute ensures the highest standards in data management, quality assurance, and research efficiency.
Global Impact and Advocacy
Beyond research, The George Institute actively engages in policy advocacy and community partnerships to translate findings into real-world impact. Its work has influenced international treatment guidelines, improved healthcare delivery, and informed health policies worldwide.
Notable initiatives include the SMARThealth program, which leverages digital technology to enhance healthcare in rural communities, and the development of low-cost medical devices through its social enterprise arm, George Health.
Notable initiatives include the SMARThealth program, which leverages digital technology to enhance healthcare in rural communities, and the development of low-cost medical devices through its social enterprise arm, George Health.
A Legacy of Leadership and Innovation
Under the leadership of Professors Norton and MacMahon, The George Institute has grown from a small team to a global organization with over 1,000 staff. Their vision continues to inspire a commitment to challenging the status quo and finding innovative solutions to the world’s most pressing health challenges.
For more information about The George Institute for Global Health and its initiatives.
For more information about The George Institute for Global Health and its initiatives.
Journal Entry: NOVELL Redesign — Transforming Stroke Rehabilitation Spaces
Innovation in healthcare facility design and services is notoriously difficult to achieve. Timelines are often pressured, and healthcare environments are complex. There are many stakeholders involved, and healthcare users are rarely meaningfully included in design. Information is not readily shared or accessed, and decisions often lack an evidence base. Certain healthcare environments, such as sub-acute stroke rehabilitation, are especially in need of design innovation.
The NOVELL (Neuroscience Optimised Virtual Environment Living Lab) Redesign project was created in response to these needs. Our goal in this project was to set a benchmark in user-centred design, combining processes from co-design, architecture, design science, and neuroscience to deliver evidence-based, end-user engaged innovation in healthcare design and to create a new, evidence-informed rehabilitation environment and service model, tested within state-of-the-art Virtual Reality.
Journal Entry: Volunteering with the Stroke Foundation
The Stroke Foundation is a national charity in Australia dedicated to partnering with the community to prevent strokes, save lives, and enhance recovery. Their mission encompasses raising awareness about stroke risk factors, advocating for improved treatment and care, and supporting stroke survivors and their families throughout their recovery journey.
As a volunteer with the Stroke Foundation, I have had the privilege of contributing to various initiatives aimed at reducing the impact of stroke in our community. Volunteers at the Stroke Foundation come from diverse backgrounds, bringing a wide range of skills and experiences. The organisation ensures that all volunteers are matched to roles that suit their abilities and interests while providing training and ongoing support to maximize their contribution.
My involvement has included participating in community awareness campaigns, assisting with fundraising events, and supporting stroke survivors through peer support programs. These experiences have been incredibly rewarding, enabling me to witness firsthand the positive impact that dedicated support and resources can have on individuals affected by stroke.
For those interested in volunteering, the Stroke Foundation welcomes individuals from all walks of life. Volunteer opportunities range from community engagement and education to administrative support and event coordination. By volunteering, you can play a vital role in preventing strokes and supporting those affected by them.
For those interested in volunteering, the Stroke Foundation welcomes individuals from all walks of life. Volunteer opportunities range from community engagement and education to administrative support and event coordination. By volunteering, you can play a vital role in preventing strokes and supporting those affected by them.
To learn more about the Stroke Foundation and how you can get involved, please visit their official website:
Journal Entry: Bloom Healthcare – Empowering Individuals Through Allied Health Services
Bloom Healthcare is a leading provider of allied health services, committed to delivering personalised care across Australia. As a registered National Disability Insurance Scheme (NDIS) provider, Bloom Healthcare offers an extensive range of services, including Occupational Therapy, Speech Pathology, Psychology, Exercise Physiology, Physiotherapy, Positive Behavioural Support, and Allied Health Assistants. Their mission is to empower individuals of all ages to attain optimal health and well-being through tailored, client-centered, and inclusive healthcare.
Their services include both assessments and therapy, as well as support for community participation. These offerings are designed to help individuals understand their functional capabilities, implement their NDIS goals, access necessary therapies, and engage actively in their communities.
Bloom Healthcare’s commitment to excellence is evident through its extensive coverage across Australia, including South East Queensland, Tasmania, Adelaide, Sydney, Wollongong, Greater Melbourne, Townsville, Perth, and soon-to-be Newcastle and the ACT. This widespread presence ensures that individuals in various regions have access to high-quality allied health services.
Their team of skilled professionals is committed to delivering assessments and interventions tailored to individual needs, with the goal of enhancing the lives of those with disabilities through high-quality and inclusive community therapy and healthcare.
Their team of skilled professionals is committed to delivering assessments and interventions tailored to individual needs, with the goal of enhancing the lives of those with disabilities through high-quality and inclusive community therapy and healthcare.
For more information about Bloom Healthcare and its services, please visit their official website:
Travel Vaccines: Staying Healthy While Seeing the World
When you’re preparing for an overseas trip, there’s more to think about than just your itinerary and what to pack. One of the most important – and often overlooked aspects of travel is making sure your health is protected. For me, that meant sitting down with my GP and getting a clear understanding of what travel vaccines I needed before I step on a plane.
Before my upcoming international travel, I received Hepatitis A, Typhoid, and Diptheria Tetanus, Pertussis (DTP) vaccinations. These are common and strongly recommended for many destinations, especially if you’re visiting areas where clean water and food safety may be unpredictable.
Why these Vaccines:
• Hepatitis A is a virus that spreads through contaminated food and water. Even something as simple as a fresh salad or ice cube in a drink can pose a risk. It’s an easy vaccine to get and offers protection that can last decades.
• Typhoid is another food an waterborne illness common in parts of Asia, Africa and Latin America. It can cause serious symptoms and is best avoided with a simple jab.
• Diphtheria, Tetanus and Pertussis may sound like illnesses from the past, but outbreaks still occur. This combined booster protects you from three serious infections – and its also often a requirement if you’re travelling to remote areas or volunteering overseas.
• Typhoid is another food an waterborne illness common in parts of Asia, Africa and Latin America. It can cause serious symptoms and is best avoided with a simple jab.
• Diphtheria, Tetanus and Pertussis may sound like illnesses from the past, but outbreaks still occur. This combined booster protects you from three serious infections – and its also often a requirement if you’re travelling to remote areas or volunteering overseas.
My Advice?
Don’t leave your travel vaccines to the last minute. Some require multiple doses or take a couple of weeks to become effective. Check in with your GP or travel clinic early and talk through your travel plans – they’ll guide you based on the countries you’re visiting and your personal health.
As someone with complex medical needs, I always make sure my health comes first. These vaccines are a small step that offer peace of mind, so I can focus on the joy of exploring new cultures, connecting with people, and collecting unforgettable memories – safely.
As someone with complex medical needs, I always make sure my health comes first. These vaccines are a small step that offer peace of mind, so I can focus on the joy of exploring new cultures, connecting with people, and collecting unforgettable memories – safely.
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